There are certain rhythms, regular cycles, that mark progress
through the year. The turn of the
seasons, special holidays, the start and end of the school year are all repeating
points that I look forward to each time they roll around. They are a part of our family’s day to day lives
I find comforting and we have little rituals that go with each. There are certain rhythms to life with my
Little Man too. I know whenever he goes
on eating sprees, gorging as if he will never be full again, it is inevitable
that we will be shopping for new clothes and shoes soon. I know that his need to be hoveringly close,
almost attached to me at the hip will wax and wane though the year at (semi) predictable
points. Some of his rhythms are less
comforting though. For example, I know
before every leap in knowledge or skill, before every new milestone we mark
will come the regression.
Ah, the regression – the one step (or more) back we seem to
be required to take every single damn time before he can move forward. It used to make me tearing my hair out
crazy. If I said I’ve totally made my
peace with it I’d be a liar but I weather it better these days than I used
to. I have my theory on why it happens
and that helps. I think as Little Man
struggles to embed some new learning into his memory in a way he can retrieve, that
it takes so much effort he becomes almost “mind blind” to things he has already
learned for a time. I used to be
terrified that the new learning was pushing out the old, as if there were
limited storage space in Little Man’s mind and at 3, 4, 5 years old he had
already reached his capacity. I was
terrified that the vanished learning would be gone completely and have to be
painstakingly relearned only to erase something else.
We’ve been through the cycle often enough now that I have confidence
that whatever is suppressed as he masters something new is still there. I don’t believe he is anywhere near his
capacity. I think his brain is just not very
efficient at storing information and each time it has something new to store it
must reshuffle where everything fits and then become familiar with where to
reach each item. Kind of like if gremlins came into your home
and rearranged your whole kitchen in the night without leaving any clue they
had been there. When you got up in the
morning to make breakfast you would still have a frying pan but it’s going to
take you some time to find it. Once you
do you’ll be able to locate it again more easily each time you reach for it. Until of course, those sneaky gremlins come
in and put something new where the blender was and move it to another
undisclosed location.
As my fear of his “fall backs” has lessened however, his has
grown. This pains me far worse than when I was afraid
and he just oblivious. I know that it is growth in his self-awareness
making it possible for him to notice when he is not able to do something he was
just a while ago. It’s one of those
paradoxical things that only a special needs parent would understand,
celebrating our child’s pain even as we mourn that they must feel it. Little Man has ventured deep into the place I
have just recently exited – the terror that what is missing right at this
moment is gone forever. He’s not ready
yet to understand there are cycles and rhythm to life and that this is just his
way of learning. That is far too
abstract for him yet. So we both suffer
in his regressions but now we do it together. He turns instinctively to me. I reassure
him. “It is ok if you can’t today. You will again. I know you will. I am right here and I will help.” I pull him on my lap, all long legs and
poking elbows, bundled up as best we can in his rocking chair. “Mommy’s got you. I know you are sad (or scared, or mad). We will do it together, ok? I love you.”
And we do his favorite script over and over. Him “Did you know you are the best mommy
ever?” Me: “That’s because I have the
best boy ever.”
I am in awe of my boy.
No matter how hard, how frightening, how tiring, frustrating, or
infuriating it is to have things that he struggled so hard to learn slip away he
keeps going. He earns, not just learns, each new thing
with sweat and tears and yes sometimes even a little blood. Over and over we practice the new skill and
the old. Sometimes for so long I think
we will both go crazy. And then – suddenly - he has
both. One day – the old is just there
along with the new skill too. He is the
best boy ever. And I am the luckiest mom.
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